…now that she has had her surgery. I wish I could post photos but she is a bit embarrassed at her appearance.
They shaved the whole entire side of her head and there is a tube running from the top of her skull behind her ear, down her neck, across her chest and into her abdominal cavity where the excess fluid will drain away. The tube is just under the skin so it is really obvious especially after the surgery. Behind her ear is this circle where a doctor will place a magnetic device that he will use to dial up or down how much pressure is needed to trigger the shunt, and should the issue be resolved, will be used to turn the shunt off.
Already she has had the rest of her long hair trimmed down
to about an inch in length, and plans to shave it down to match the rest of her
head when the swelling goes down.
This is my baby cousin, guys. She is as close to a blood
sister as I really have, her and her siblings. Even though she was always
taller than me and bigger than me I was the elder one. I always tried to look
out for them when I would go spend summers at her house growing up.
Here in a few days I’m getting my head buzzed out of love
and respect for what she is having to go through. If people don’t like it,
tough! She is half a country away so I can’t be there physically, but at least
I can be there spiritually.
I’m going to try to find some bandannas that represent me
to wear during the interim while my scalp adjusts to the extra sunlight. Any
ideas? One friend says biker bandannas would reflect my attitude best, and
another says Native American ones. I dunno.
I love The Secret, and perhaps that is why I feel kinda
strange here lately. I have my younger adopted sister who walks with a cane, my
cousin who just had this surgery to have this tube implanted into her skull I
gather permanently, and various friends who are diabetic and have a slew of
You know what I have? A hormonal imbalance (controlled by
birth control pills) and an annoying reaction to milk.
That’s it. Despite all the things that have happened in
the past, I’m in the best health of my life at age 39, and here are all my
friends and family so ill around me.
I love my health, I love this ability. Still at times I
feel guilty because it’s like I’m some sort of superhero who is trying to learn
and master their power and who feels great and wonderful yet those around her
are ill and you know there’s a solution but you can’t force them to take it,
cause no one is ready for it.
When I buzz my head I’ll post pictures here so all of you
can have a good laugh. If Dani gets a good laugh out of it then it is worth it!
Sigh. I cried when I saw those pictures of my cousin. I
worry about her so! She has already battled cancer and won, and now has to deal
with this! As a result, she has left medical school after all of her hard work
Regardless of what happens, I am SO proud of her! She is
fighting. She hasn’t given up. Even posting the pictures she talks about how
“cool” it was that the doc would use this one device to control her shunt, and
she wouldn’t have to have another surgery as a result.
Cuz, you are one brave chick, and I love you!